CERKL Gene: My Newly Identified Eye Disease Is Not an Eye Disease, Essay 10 of #52essays2017

Last week I visited my ophthalmologist and learned that my blindness is caused by a mutation to the CERKL (pronounced like circle) gene, which, it turns out, is oddly not specific to my damaged retinas. At Genecards.org I read, “CERKL (Ceramide Kinase Like) is a Protein Coding gene.” And on Wikipedia I learn that “ceramides are a family of waxy,… Read more

Adulterated Rose or, The Smell of Regrettable Youth, Essay 7 of #52essays2017

The guy with the hard metal name was beautiful in my degenerate eye. Beautiful with a girlfriend. And a Volkswagen bus. This was around the time of the earthquake of ’89, when the influences of flower power still loomed large in San Francisco. I’d been pining for so long and then he said they’d broken up. We climbed into his… Read more

The Voice of the Turtle, essay 3 of #52essays2017

2:10 My beloved spake, and said unto me, Rise up, my love, my fair one, and come away. 2:11 For, lo, the winter is past, the rain is over and gone; 2:12 The flowers appear on the earth; the time of the singing of birds is come, and the voice of the turtle is heard in our land; 2:13 The… Read more

What I See/Saw I: Hallucinations (Essay 2 of #52essays2017)

I am blind, but that does not mean I live in darkness, and I’m not just talking metaphor here. These days the visionscape confronting me sparkles and undulates, with greater or lesser intensity, constantly, veiling the world beyond with simple and complex hallucinations. The brilliance of my visionscape is not less intense in a dark room than in a brilliant… Read more

In the Beginning Were the Eye Doctors, essay 1 of #52essays2017

Before the base closed to make way for the National Park, Lucasfilm, and the Thoreau Center, my mother and I drove regularly through the Presidio to buy cheap groceries at the commissary or to the Letterman Army Medical Center for visits to the pediatricians and then many eye doctors. My dad was in the military, and as a dependent, I… Read more

Winter Wonder Maze: My first week without a home of my own and blind

I wish I could claim “winter wonder maze” as my own term for Alabaster‘s mother’s incredible Xmas installation–involving 42 trees, countless elves, Santas, snow babies (little snow men), thousands of feet of garlands, lights, a train set, and whole mountain ranges of glistening cotton snow, but I can’t. It was he, with whom I set out vagabonding, that comforted me… Read more